Hailey

Saturday, July 31, 2010

Last day of July :)

Hi all, Just wanted to update a few links etc. I found out last night my lovely friend Lupe is willing to extend her Scentsy fundraiser so all you have to do if you are interested is go to her website

https://wickless-rocks.scentsy.us/Home

And on the left side you will see "My Open Parties" You need to Click on the "buy from party" next to the "Help Hailey Kent Fundraiser" so that the proceeds on anything you purchase will go to Haileys Fund. Big Thank you Lupe for extending that!!

Also another awesome woman is offering to donate the profits from the sales on her website which is for Homemade Gourmet. Lots of yummy items on there. You can see her website here sorry the information was incorrect on the previous posting. But this one is the correct one :)

www.homemadegourmet.com/jclemens

Big Thank you Jodi for doing that!!

There may also be some other fundraisers going on this month. I am waiting to hear on those and I will update as soon as I hear. There have also been other fundraisers in the last month or so, I will update the amounts that have been raised by those when I hear from them. Thank you so much to all who have/are/will be supporting us again whether its with thoughts, prayers or some form of donation we appreciate everything!!

So far this is how the Paypal looks....

Donations will only include initials, amounts and if Paypal fees were removed so we can show the total that we have so far. Hope I got the initials right, on some of them the spouse is on the paypal so I had to try and figure out who it was LOL :)

TB-$4
SC-$2
MS-$5
CH-$15
SG-$5
KM-$5
IZ-$10
AC-$2
JB-$5
LE-$50
CT-$2
TOTAL: $105

Hope you all have a great rest of the weekend! :)

Friday, July 30, 2010

Happy Birthday Maria!!!

Wanted to wish Maria a very very Happy Birthday! May this year bring you all the happiness and joy you deserve! I'm very happy and feel very blessed to have met you and to call you my friend. I hope you have a great day today!!!!

~Lilianne

Wednesday, July 28, 2010

Trying to get up to date

Please hang in there while we try to get up to date here. We'll try to post a better update soon But its getting late and the Lupron makes me sleepy so I need to get some sleep :)

But just a brief update. As of right now I am still on the BCP's and the Lupron. Next week we should have some news after our appt. But right now we are looking at an ER (Egg retrieval)date of about Aug. 19-20th and a transfer somewhere around Aug. 23-25th. Very exciting that the time is coming closer.

Also, There are just a few more days left in the fundraisers that are going on right now. One lovely lady is offering the profits from her Tupperware sales to The Kent Fund and also there is another lovely lady who is offering the profits on orders under the Haiely Kent fundraiser to help out. So if you want to place an order now is the time. There are only another 1-2 days left.

Here is the link to the Tupperware http://my2.tupperware.com/tup-html/V/vickiwadsworth-welcome.html

Here is the link to the Scentsy https://wickless-rocks.scentsy.us/Home
(this one you have to click on the left side where there are parties listed and click on Haileys fundraiser in order for the profits to go to her.)

This lovely lady is also donating profits to The Kent fund thru her business Homemade Gourmet. http://www.homemadegourmet.com/HG-redesign-index.aspx

Also one last one is Urban Sparrow. They are donating a percentage of the sales of these beautiful "Joy" necklaces. I love mine!! They are great gifts as well as for yourself! http://www.urbansparrowdesigns.com/i...products_id=58


Thank you for all the love support and prayers! And a special thank you to the awesome ladies who are offering their profits in support! All the help is very much appreciated!

Will try to update soon :)

A little bit of Hailey history....


Hi everyone for our first post I wanted to give a little background on Hailey for those who don't know. This background story was taken from Hailey's Carepage.



Hailey was born on June 6th 2006 prematurely along
with her twin brother Ryan. They were born at 33 weeks
and 5 days. They both required oxygen and
needed to learn how to eat. They spent 15 days in the
NICU. They both came home and seemed to be progressing
nicely but shortly after Hailey began
having problems with her health. She began vomiting
and getting Petichae(pinpoint bruising) and running
low grade fevers, after several trips to the
pediatrician & bieng misdiagnosed with a typical virus
Hailey was sent to the emergency room at Tarzana
Hospital and was then rushed to Childrens
Hospital Los Angeles on October 4th 2006. She was in
critical condition & was not expected to make it
through the night,she was diagnosed with a rare
aggressive form of Leukemia ( Infant ALL with the
mll gene) she started an aggressive high dose chemo
regimen the next day and achieved remission on day 28.
She has spent a total of ten months of her
life as an in patient & countless days in the day
hospital. She was an extremely sick baby and had
several infections and fevers along the way, siezures
and many many surgeries and spinal taps. Afer four
months and still on chemo she relapsed in Feburary
2007. She was started on another even higher dose of
chemo to get her into a temporary remission so a bone
marrow transplant could be performed. During
this time she had several setbacks with infections but
was eventually back into remission. Unfortunately her
brother Ryan was not a close enough match
so the search began for a marrow donor. There were no
perfect matches on the National Marrow Donor Registry
so we held several marrow drives but Hailey was too
sick to wait. She recieved a mismatched Umbilical cord
blood transplant on May 30th 2007 at Childrens
Hospital Los Angeles. Afer an intense conditioning
regimen she recieved her transplant and spent another
four months in the bone marrow unit. She was extremely
sick but got to come home on September 4th 2007 and
she is still at home under strict house
isolation along with her twin brother Ryan who is also
isolated so that he wont bring any illnesses home to
Hailey. She has developed Acute and Chronic
Graft versus host disease (where the donor cells
attack her cells)do to the mismatched transplant. She
must stay at home indoors and avoid the sun. She
also suffered from VOD (venous occlusive disorder) but
she is free from it now. She takes several medications
daily and is on high dose steroids & anti-rejection
drugs. She is also recieving in home therapy,
physical, Occupational, Feeding and speech four to
five times a week and has to go back to Childrens
hospital weekly. Her risk of relapse is very high but
we continue to pray this will never happen, this would
require another transplant which is usually not very
successful. She has recently lost her hair again and
it is believed it may be due to the graft versus host
disease and she is having Thyroid problems due to the
chemo she recieved. She still has issues eating but
she is quite happy most of the time in spite of
everything she has been through and has recently
learned how to walk. She is a very strong baby girl
and she is our hero & a true miracle from God.